Monday, June 24, 2013

Bedridden

I saw my mom a couple days ago. She slept for two hours that I was there. She was in her bed, whereas usually she's in her massage chair. She wanted to move to her chair, so I told my dad. He said he couldn't lift her, that it was just too difficult for him to move her, so she'd have to stay in bed the entire day. I gave her a leg and foot massage, which she loved. I tried to bend her knees and I couldn't. It was like trying to bend a solid wooden leg. I gave her some steamed carrots and later she felt nauseous. She hasn't been having bowel movements, so the toxins are staying in her body, causing her to be nauseous. I am so thankful for the CNAs that come over. They help so much. I only wish they could be there more often. She's been on Hospice since she moved back in with my dad in February. My dad gets so stressed out, he turns to drinking to relieve his stress, which doesn't solve anything--it just makes things worse because it causes him to not think clearly.

She's hooked up to oxygen all the time now, whereas before she just had it when she felt she needed it. It's more difficult for her to breath. She can't even have anything laying on her chest because it's too hard for her.

Hospice went over the pros and cons of getting a feeding tube for her because it's been getting difficult for her to swallow. They said that if she had gotten a feeding tube months ago, it would have helped, but if she gets it now, it will probably kill her because of the stress it puts on the body when she's already so weak. I think it's a good thing that we didn't get a feeding tube for her months ago because it would have just made her muscles weaker more quickly.

It's getting extremely difficult to talk to her. I haven't talked to her on the phone since last November when she sang me "Happy Birthday" (which made me cry). So I only talk to her face to face and sometimes she has to spell the words that she is trying to say because it's so difficult to understand her. It's like she's talking with her mouth closed.

She hasn't been getting her legs stretched or massaged as often as she needs to. I am also finding lots of food in the house that has bad additives that make a person ill. I've been doing a lot of research on food and found that many illnesses like ALS is caused by our food. Read more about it at nongmoshoppingguide.com. So we've been growing a huge garden so we can eat our own organic food. It saves us a lot of money and is so much healthier. We don't eat anything with the following in it unless it's organic or non-gmo certified:
Aspartame (also called AminoSweet®,    NutraSweet®, Equal Spoonful®, Canderel®,  BeneVia®, E951)
baking powder
canola oil (rapeseed oil)
caramel color
cellulose
citric acid
cobalamin (Vitamin B12)
colorose
condensed milk
confectioners sugar
corn flour
corn masa
corn meal
corn oil
corn sugar
corn syrup
cornstarch
cottonseed oil
cyclodextrin
cystein
dextrin
dextrose
diacetyl
diglyceride
erythritol
Equal
food starch
fructose (any form)
glucose
glutamate
glutamic acid
glycerides
glycerin
glycerol
glycerol monooleate
glycine
hemicellulose
high fructose corn syrup (HFCS)
hydrogenated starch
hydrolyzed vegetable protein
inositol
inverse syrup
inversol
invert sugar
isoflavones
lactic acid
lecithin
leucine lysine
malitol
malt
malt syrup
malt extract
maltodextrin
maltose
mannitol
methylcellulose
milk powder
milo starch
modified food starch
modified starch
mono and diglycerides
monosodium glutamate (MSG)
Nutrasweet
oleic acid
Phenylalanine
phytic acid
protein isolate
shoyu
sorbitol
soy flour
soy isolates
soy lecithin
soy milk
soy oil
soy protein
soy protein isolate
soy sauce
starch
stearic acid
sugar (unless specified as cane sugar)
tamari
tempeh
teriyaki marinades
textured vegetable protein
threonine
tocopherols (vitamin E)
tofu
trehalose
triglyceride
vegetable fat
vegetable oil
vitamin B12
vitamin E
whey
whey powder
xanthan gum

Here's a video of her with my newest nephew who's three months old: